“How to Stay Sane in Pain – Clarity, Resilience and Calm with Lupus” was written by someone with lupus, with contributions from people with lupus, for people with lupus, and for those who love and care about them.
It tells the story of my experience of a massive lupus flare in 2012, which was triggered by a severe infection and is supported by the testimonies of other lupus patients.
Some 1.5 million Americans have been diagnosed with lupus, and it is estimated that approximately 5 million people worldwide currently have the disease.
However, at present, the disease is unfamiliar to most and widely misunderstood:
“Lupus can be overwhelming and mysterious” – Johns Hopkins Lupus Center.
This lack of understanding is leading to high levels of misdiagnosis, belated diagnosis, and downright wrong diagnosis of the disease. Therefore, this could be one of the leading “sleeper” diseases of modern times, with people suffering from systemic lupus erythematosus, unacknowledged and untreated.
While efforts to raise awareness of the condition continue to increase, there is clearly much more to be done.
Some celebrity cases in recent years — including Seal, Selena Gomez, and Lady Gaga — have raised the profile, but more education and publicity is certainly needed.
This book aims to increase overall awareness of the condition and related autoimmune conditions. It takes a three pronged approach:
Part 1, “Understanding Lupus” gives a comprehensive understanding of lupus, from how it is diagnosed, through its medical history, to its leading symptoms and medications and their main side effects.
Part 2, “A Mental and Emotional Journey” recognizes the psychological implications of lupus and goes on to give psychotherapeutic solutions.
Part 3, “Holistic Physical Solutions” looks at physical solutions which work alongside medical treatment including advice on diet and beneficial body work.